My Loved One May Have Dementia. What Should We Do Next?
Maybe your mom has started asking the same questions repeatedly, your dad seems confused about something he's done for years, or you've noticed changes in a loved one's behavior, judgment, or ability to manage everyday tasks. At first, you might wonder whether it's simply part of getting older. But when those changes become more noticeable, it's natural to feel concerned and begin asking yourself whether this could be dementia and, if so, what your family should do next.
For many families, these questions bring uncertainty, fear, and an overwhelming amount of information. The important thing to remember is that you don't need to have all the answers today, and noticing changes doesn't automatically mean your loved one has dementia. The first step is understanding what's happening and getting the right support.
Recognize the Changes Without Jumping to Conclusions
Dementia is not one specific disease. It's a general term describing changes in memory, thinking, reasoning, and other cognitive abilities that interfere with everyday life. Alzheimer's disease is the most common cause of dementia, but there are other types, including vascular dementia, Lewy body dementia, and frontotemporal dementia.
While memory loss is often the symptom families notice first, it isn't the only possible sign. You may notice repeated questions, confusion about dates or familiar routines, difficulty managing bills or medications, changes in judgment, trouble finding words, or shifts in mood and behavior. Sometimes, a person may become disoriented in familiar places or struggle with tasks they've managed independently for years.
These changes deserve attention, but they don't automatically mean someone has dementia. Medication side effects, depression, sleep disturbances, thyroid conditions, vitamin deficiencies, infections, and other medical issues can sometimes cause similar symptoms. That's why it's important to avoid making assumptions and seek an appropriate medical evaluation.
Start With a Medical Evaluation
If you've noticed concerning changes, encourage your loved one to schedule an appointment with their primary care provider. Rather than assuming a diagnosis, focus on describing what you've observed. You might say, "I've noticed you've been having a harder time keeping track of appointments lately. Would you be comfortable talking with your doctor about it?"
Before the appointment, it can be helpful to write down the changes you've noticed, when they began, whether they've been gradual or sudden, and how they're affecting everyday activities. Bring a list of current medications and supplements, relevant medical history, and any questions your loved one or family would like answered.
Depending on the situation, the healthcare provider may recommend cognitive assessments, bloodwork, medication reviews, imaging, or evaluation by a specialist. An accurate diagnosis can help clarify what's causing the symptoms, what treatments or support may be appropriate, and what to expect moving forward.
It's also important to recognize that sudden confusion or a rapid change in thinking or behavior should not be assumed to be dementia. These changes may signal an urgent medical problem and require prompt medical attention. If symptoms suggest a stroke or another emergency, call 911.
Include Your Loved One in the Conversation
When families become worried, it's easy for conversations to shift toward talking about an older adult rather than with them. But experiencing memory or cognitive changes doesn't automatically mean someone can no longer express preferences, make decisions, or participate in planning.
Whenever possible, involve your loved one directly. Ask what changes they've noticed, what concerns them, and what matters most. You might say, "I know we've both noticed some things changing. I'd like to understand how you're feeling about it," or "Whatever we learn, I want us to figure out the next steps together."
Try to avoid testing their memory, arguing about forgotten details, or making assumptions about what they can and cannot do. The goal is to create an environment where your loved one feels respected, heard, and supported.
Understand What a Diagnosis Means
If your loved one receives a dementia diagnosis, you may experience a range of emotions. There may be sadness, fear, frustration, relief at finally having an explanation, or uncertainty about what comes next. All of those reactions are understandable, but a diagnosis doesn't tell you everything about what life will look like.
Different types of dementia affect people differently, and the progression of symptoms varies from person to person. Understanding the specific diagnosis can help your family make informed decisions without assuming that every possible future challenge will happen immediately.
Ask the healthcare team what type of dementia has been diagnosed, what it means for your loved one right now, whether treatments or interventions may help, and what changes to watch for. It's also helpful to discuss potential safety concerns, recommended follow-up care, and available resources for both the person diagnosed and their family.
Begin Planning, But Don't Try to Solve Everything at Once
After a diagnosis, families sometimes feel pressure to make major decisions immediately. Questions about driving, living arrangements, future care, finances, and the longtime family home can quickly become overwhelming. These are important considerations, but they don't all need to be answered in one conversation.
Start by understanding what support is needed right now. Consider safety, medications, transportation, nutrition, social connection, and daily routines. From there, begin looking ahead at what additional support may eventually be needed and how your loved one would prefer to receive it.
This may also be a good time to review legal and financial documents, discuss healthcare preferences, and identify trusted individuals who can provide support as needs change. An elder law attorney and qualified financial professional can help families understand the appropriate planning steps. Early planning also gives the person living with dementia more opportunity to express their wishes and participate in decisions about their future.
It's important to remember that a dementia diagnosis does not automatically mean someone needs to move into memory care. Some people continue living at home with appropriate support, while others may eventually benefit from additional care or a different living environment. The right plan depends on the individual, their needs, preferences, and available resources.
Find Support for the Whole Family
Dementia doesn't affect only the person receiving the diagnosis. Spouses, adult children, friends, and other caregivers may also experience significant changes in their lives. Family members may disagree about what support is needed, one person may take on most of the caregiving responsibilities, or relatives living far away may struggle to understand what's happening.
These challenges can become emotionally and physically exhausting, particularly as care needs change. Support groups, dementia-care professionals, healthcare providers, community programs, and respite services can provide education, practical assistance, and connection. Sometimes the most helpful thing a family can do is recognize that additional support would benefit everyone involved.
Remember That Connection Still Matters
One of the most important things we've learned through our work with older adults and families is that a dementia diagnosis does not erase the person. Your loved one still has a history, personality, preferences, relationships, and a need for connection.
There may be changes in how they communicate or participate in activities, but meaningful moments are still possible. Listening to familiar music, looking through family photographs, taking a walk, sharing a favorite meal, or simply sitting together can create opportunities for connection and enjoyment.
You don't always need to correct a memory, solve a problem, or turn every interaction into a task. Sometimes, being present and meeting your loved one where they are in that moment is what matters most. Your relationship is still important, even when the way you connect begins to change.
Where Do We Go From Here?
If you're concerned that someone you love may be showing signs of dementia, the most important first step is to seek an appropriate medical evaluation and begin understanding what's changing. From there, you can start identifying immediate needs, learning about available resources, and making a thoughtful plan for the future.
At Dovetail Companies, we approach later-life transitions through Calm · Clarity · Connection™. Calm means creating space to process what's happening without feeling pressured to solve everything immediately. Clarity means understanding the options, identifying priorities, and determining what decisions need to come first. Connection means bringing in the right professionals, family members, and resources to support the journey ahead.
We understand that dementia-related concerns can eventually lead to questions about care, living arrangements, rightsizing, moving, and selling a longtime home. Our role is to help families understand their options, plan transitions thoughtfully, and connect with appropriate professionals when additional support is needed.
Navigating dementia can be difficult, but you don't have to navigate every decision alone.
Resources Available to You
These organizations offer reliable information, education, and support for individuals and families navigating memory changes and dementia.
Alzheimer's Association — Information about Alzheimer's disease and other dementias, caregiving, treatment, support groups, and planning for the future.
10 Early Signs and Symptoms of Alzheimer's — A helpful starting point for understanding changes that may warrant further medical evaluation.
Boston University Alzheimer's Disease Research Center — Information about Alzheimer's disease research, education, and clinical-care resources.
National Institute on Aging — Research-based information about memory changes, cognitive health, and dementia.
Navigating a Later-Life Transition?
At Dovetail Companies, we help older adults and their families navigate the decisions that come with planning, rightsizing, moving, and selling a longtime home. Our approach brings Calm · Clarity · Connection™ to the process—helping you understand your options, determine the right next steps, and connect with trusted professionals when additional support is needed.
Whether you're planning ahead or already facing a transition, you don't have to figure out every piece at once.
Dovetail Companies
617-227-1600
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